BE quiet for MND… that’s the message from one local family who have organised a sponsored silence to highlight the severe symptoms of Motor Neurone Disease (MND).
The fund-raising event has been organised by the family of Marian O’Goan. The Strabane mother of three was diagnosed with the condition just last year. A progressive diseases MND damages parts of the nervous system leading to severe muscle weakness for sufferers.
Although feeling unwell for many years before her diagnoses Marian’s daughter Patrice says it is the loss of her mother’s voice which has caused her mum the most pain.
“At the moment mummy is having the most bother with her speech and swallow,” explains Patrice. “She has completely lost her voice and that has been very difficult for her, and for us, to accept.
“In the beginning it was harder, but now mummy is communicating through writing and texting. She gets pains down one side of her body and can be quite unsteady on her feet, but I think losing her ability to speak has been the hardest part of this for mummy.”
Describing her mother as the most inspirational and strongest woman she knows Patrice said she, along with her two sisters Roisin and Catriona and their father Patrick, have decided to host a sponsored silence.
“We thought we would organise this event to help people understand the severity of MND. We also thought it would be good opportunity for us to realise the difficulties mummy faces on a daily basis and how much harder it is for her to communicate without her voice.”
The sponsored silence will take place in the Bowling Green Bar next Friday, (October 27) from 7-8pm and Patrice says it’s all about having fun.
“For one hour we want to challenge people to try communicating with each other without talking. They can text or write notes or even try using sign language. We would love to see people come along and have a laugh by just trying to keep quiet.
“We are doing this event for mummy, and we hope that we can raise awareness and money that will go towards finding a cure for this horrible disease”, Patrice added.
- All proceeds raised on the night will go to the Motor Neurone Disease Association or donations can be made via Patrice’s JustGiving page by going to www.justgiving.com/fundraising/patrice-o-goan.